Recently, there’s been a lot of discussion about new independent documentaries that are circulating around the festivals. Meanwhile, Michaela O’Brien, Associate Producer at Northern Light and Production Manager/Archival Researcher for Whitey Bulger: The Making of a Monster, has been working on an independent documentary of her own. Last week, many of us joined her and friend of NLP Melissa Langer at a fundraiser they held for their film In Crystal Skin. The film is an intimate documentary about four people living with Epidermolysis Bullosa (EB). Patients with EB lack the protein that binds the skin to the body, as a result they suffer great pain and blisters at the slightest touch. O’Brien and Langer not only spent time with the families and people afflicted with EB, they also interviewed medical experts and advocates to help better understand and bring awareness to this rare disease.
At a packed art gallery in Jamaica Plain Michaela and Melissa premiered the film’s trailer and displayed striking production stills, as well as screened clips from the film. To help raise funds they held a raffle featuring great prizes donated by local JP businesses. The duo’s efforts have been extremely successful in building a community around the film, but they are continuing to fund-raise for post production. The pair will be returning to Bogotá, Colombia this week, to live along side two of their characters, documenting their day to day lives and how their experiences are shaped by their rare disease. Be sure to check their facebook and twitter pages for updates on the film’s progress. It was great to see so many Northern Light staff, friends, and family come out to support a great film made by one of our own.Social tagging: Epidermolysis Bullosa > In Crystal Skin > Michaela O'Brien